Wednesday, August 20, 2008

Wednesday point of view

I went to bed around 3 a.m. yesterday morning. I spent my I can't sleep time, making jewelry. I am trying to start a business that I can manage from home since my health is poor enough that I am unable to work outside of my home. So, I made earrings and lanyards into the wee hours until I finally felt that I could sleep. Insomnia is a very large part of my life. I am always trying to walk through life sleep deficient. Not because that is my plan, but it is just the way my life is and this is the way that I have found to adapt at this point. I have so much difficulty falling asleep and that is even with taking medications. Then because pain is so much of a beast, I am not able to stay asleep long, so I am frequently changing positions, or getting out of bed to heat up a comforting warmer that I can put in the microwave. Or I am taking my medications to control pain before I can settle back into bed. My best sleep time is from 3 a.m. until noon or often times later like at 3 p.m. This may seem like a pretty boring read, but I am writing it in case someone that has a disabling health condition may be comforted or encouraged some how through my writing. I'm hoping that this can be a blog sort of support group. Also, this gives me a chance to just vent about the tough stuff, and rejoice about the good stuff. And then just put it away...kind of tuck it into bed, and forget about it. This might also be a help to my own family members if they should read it. Or to family members who have loved ones with life challenging
health issues. Just to give a better understanding of what life is like for us.
Good thing daughter and I went shopping. Just some girl time with the country music channel playing, a little singing in the car time. Simple joy!

"The Lord is gracious and righteous; our God is full of compassion. The Lord protects the simplehearted; when I was in great need, he saved me. Be at rest once more, O my soul, for the Lord has been good to you." Psalm 116:5-7

Monday, August 18, 2008

Thinking about life with a chronic illness

Tonight I am thinking about living life with a chronic illness. Chronic illness is as annoying as it sounds. Imagine being very nasal and slowly saying the word C H R O N I C. Yep, that pretty much sums up the feeling. I am writing this blog as a way to reach out to others who are journeying through life with difficult health problems. Also, as a way to sometimes vent the frustrations that life with illness presents. Such as when well meaning friends say things that they think should help you...but because they do not understand the suffering of walking through each day with an illness presents...their well meant advice...only adds to the frustration and pain, and shows a total misunderstanding of how difficult life is when you are "dancing as fast as you can," and still can't keep up with the crowd. If anyone has a comment on positive ways of dealing with this, please feel free to join in.

I'm also writing this as a way to express how God's love carries me through both the best and worst of days and I need to remember to keep this as the central focus of my day. Well that pretty much sums up this first post!

"But I will sing of your strength, in the morning I will sing of your love; for you are my fortress, my refuge in times of trouble. O my Strength, I sing praise to you; you, O God, are my fortress, my loving God. Psalm59:16-17
Blessings to you this day!